Since my son was born in May, 2002, I have had a lot of bad days.  Watching him get taken to surgery nine times, seeing catheters shoved into places that boys shouldn't have catheters shoved, watching him get stuck for IV's so many times that I've lost track and seeing him almost die twice will tend to make every day feel like a Monday.  A Monday when you realize that you're all out of coffee and you don't have any clean underwear.

There have been so many struggles that parents of a typical child can't even imagine.  And before someone comes along and tells me how fortunate I am that my son can walk and talk, I will say that I know we are lucky.  I have spent enough time around children in the hospital to know that things could be horrifically worse.

But, there have been struggles.  It took 13 months before tube-feeding wasn't an ever-looming threat and it was 18 months before he took his first step.  That was after weekly physical and occupational therapy appointments and more genetics tests than even the geneticists knew existed.

He is almost nine and he vomited while eating just yesterday.  He can't button his own pants.  We found out last week that he needs hearing aides.

As a parent, you fight through these situations.  You modify his surroundings, you buy him velcro shoes, you cut his bites into little pieces.  You, quite simply, adapt.

But, there are certain challenges where there is no fix.

My son is not only medically different from his peers, but also physically, emotionally, behaviorally and socially.  He is tiny, quirky and the most unique individual I have ever known.  Most adults "get him" and appreciate him for who he is.  Most kids, don't.

For the past six weeks, my son has been enrolled in a basketball clinic at his school.  This was more of a social exercise than an athletic one, as my almost nine year old weighs only 43 pounds.  He did, however, just move up from a 5T to a 6 Slim, so he has that going for him.  He'll be out of that negative 3rd percentile before we know it!

Over the last month, my boy learned to dribble and bounce-pass and he learned to play one heck of a man-to-man defense.  He had fun.  They ate pizza after today's scrimmage.  He tried his best.

He has no idea that I sat in the stands and cried this afternoon, because I watched every kid on the court look right through him when it came time to pass a teammate the ball.  My husband knew I was crying, as he sat stoically, but I told him that it was making me sad to watch and he replied, "I know.  It's awful."  If he was a woman, he would have totally needed a tissue too.

I can't fault the boys.  They're young and they wanted to win.  They were smart enough to know that my son couldn't make a basket.  Boys don't have the compassion that girls do.  No offense, fellas, but I'm going to have to generalize this time.  If my son was on the other side of the ball as a typical child, then he would have probably done the same thing.

But, he wasn't on the other side of the ball and he is not a typical child.  I watched him holding his hands in the air, waiting for a pass, for over an hour.  He got a chance to dribble twice, when one of the parent volunteers TOLD the boys to pass it to him.  He loved those few, fleeting seconds.  I could see the pride in his face.

As a parent, you want your child to shine, not be ignored.  You want the world to see what you see; that inside the quirky kid is a funny, smart, gentle soul.  Okay, okay...he's ornery too, but everyone does see that.

It is so hard to have a child like mine, but it is also very special.  It is a joy to see him succeed and to go places I never thought possible.  To me, he is a gigantic force in the universe.

But, to the boys on the basketball court, he is but a speck.

Labels: Family Life, Kids, Prematurity, Ramblings, Socializing, Special Needs, Things I Would Change

When I was growing up, my immediate neighborhood had a handful of kids my age.  Within one block there were three boys and a girl with whom I spent many a summer night climbing trees and playing baseball.

One of the boys was a good friend and I spent a lot of time at his house.  He introduced me to Monty Python and he had a one-eyed, guinea pig.  No, that's not a euphemism.

I had so much fun at his house.  I played his keyboard (oh my goodness, NOT a euphemism!), we battled at bumper-pool and there was a time, or two hundred, when we played video games.  Geekdom rules!

Fast forward to high school where one of my best friends was a boy.  I hung out at his house so much that when he moved away for good after high school, I still hung out with his mom all the time.  She and I used to have playdates for my daughter and her granddaughter.

I had another really good male friend during college, a group of men with whom I used to work that I'm still close to and, of course, there's my ultimate best friend...my husband.  He has been with me through highs, lows, trauma, drama, thick and thin.  Mostly thick, if we're discussing my thighs anyway.  Oh, and blogging; he's been with me through that too.  He also pays our mortgage.  He's a friend with all kinds of benefits.

Every one of these guys are people that I could see for the first time in years and pick up right where we left off.  There is no judging each other about the way we look, or what kind of moms we are, or feeling guilt because our house isn't clean and theirs is, and they're the head of the PTO and just made a craft and cupcakes and let their daughter have a slumber party where Supermom blended up cauliflower and put it into the punch, but the kids don't even know they're drinking vegetables!  Men don't care.  I'm pretty sure they're lacking the superficiality gene.  Because, there totally is one.

I am lucky that I have a husband who trusts me and understands that I like beer and football as much as I like home decorating and flowers.  He has a girl-friend (that's a friend, who's a girl) who goes to hockey games with him, because she loves hockey.  I don't.
 
I feel more comfortable that he's hanging out with her than with a lot of guys I know.  No offense, fellas.

And, if you are offended and feel like you need to argue that men and women can't be friends, then me and my male, blogging bestie will take you down.  That's right.  Downtown, Buster Brown.

Photo courtesy of Angry Julie.  Word.

Either that, or I'll squish you with my chin(s).

Labels: Bllissdom, Friends, Getting to Know Me, My Better Half, Photos, Ramblings, Socializing

When I was a little girl, I wanted to be a surgeon. I was fascinated with the human body, with all of its intricacies and its ability to work the parts together like a symphony.  Cutting into a person to repair something, to heal them, well, what better way to show my homage?

The picture in my head was of fixing someone to make them whole again, to mend a broken part so it would sync with the body.  The picture in my head was one of seeing the person move without a limp, to dance without pain and of heartbeats and the color of a muscle.

I was looking at surgery like a creative endeavor.  

Unfortunately, between me and my art stood histology and microbiology and a lot of other "ologies".  It turns out that the intricacies of the human body are all very scientific.  Who knew?

During college, I worked in sales.  I loved sales and I was really good at it, but as it turns out, when you move from selling contemporary home furnishings and dinnerware to selling someone a 30 year mortgage, a lot of the fun goes right out the window.

Somewhere along the line, I stopped trying to decide what to be and allowed myself to be forced into work I did not enjoy.  Then I had babies.  Remember my discussion about the intricacies of the human body?  Yeah, well some of those intricacies will get you knocked up.

For the past 12 years, my life has revolved around shaping my children.  Helping them grow, keeping them healthy, encouraging them to use their brains, play harder, be smarter, be confident and kind.  Oh, and those intricacies?  Most of them come flying out explosively in a newborn's diaper anyway.

Through all of these occupational changes, there has been one constant.  There has always been my love of the written word.  Of course, reading the thoughts of others usually doesn't pay much.  If they paid you for love and enthusiasm, however, I would be rich!

Up until about a month ago, I was pretty discouraged.  In just over six months, I will turn 40 and as badly as I wanted to follow my passion, I didn't see it working out.  Being employed as a cook has been rewarding and enjoyable, but you can't keep the heat turned on by telling the gas company that you'll pay them with sloppy Joes.

I spent months looking for something that would allow me to do what I love.  I spent so much time job hunting that I had to stop other writing gigs so I could focus on earning more money.  I sent my resume to so many creative companies that it would make your head spin.

"Hmmm...well, she has no experience and not much of an education.  She owned her own business, but now she works as a cook.  This resume goes in the lost cause pile."

And, that's how I felt.  I was a lost cause.

Though, I looked at the bright side.  I still had my evenings free to chat on Twitter and to read blogs where I could immerse myself in the brilliance and creativity of others.  Too bad you can't get paid for that!

Until one day, when I opened my e-mail to find someone had sent me a rainbow.  No, not a stupid e-mail forward, but a real, live rainbow.  One that I could climb atop and slide down.  One where I flew right past the leprechaun and into a pot filled with golden Twitter streams.

My love of blogging and my passion for social media got me a job.

Not just any job, but my dream job.  It is exactly what I have been looking for.  For a long, long time.

I am reading the ideas and opinions of intelligent people and I am taking in the flow of language.  I see pieces of writing come together, each individual word on a page melding into one thought.

I am communicating constantly through social media.  I believe it to be the most powerful resource and tool that a company can have.

I am working from home with my children near me.  I am giving them room to grow, but still here to guide them.

And, none of this would be possible without a company who sees past a pathetic resume and, instead, sees that passion is, sometimes, more important than experience.

I am happy.  I enjoy my work immensely.  I love doing something I believe in.  All the parts are finally coming together.

Like a symphony.

Labels: Bringing Home the Bacon, Ramblings, Socializing, Tooting My Own Horn

Much to my husband's chagrin, I am a Twitter addict. I love to curl up on the couch with my laptop after the kids have gone to bed and read what everyone is doing in 140 characters or less. I don't know why I like it, but I do.

Another great mystery is why I like to go on Twitter after I take my Ambien. Some people sleep-eat, some people make phone calls, I even know someone who took their dog to the dog park and lost him because she was on Ambien. I feel the need to say it wasn't me. Anyway, some people do crazy things on that medicine. I just send tweets.

Last night, after my girly part surgery, I went on Twitter on Dilaudid (also know as Hydromorphone). I did NOT take Dilaudid AND Ambien, because then I would be dead.

Here, for your enjoyment, are a few of my Dilaudid tweets...

I'm on Dilaudid,daf; everylook lop;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;

@secretagentmama But I'm halluciantiaon in my liviner oom and I've having fn. I jusst saw a buffalo

I have to pee and I hoptea I don't fall asleep in there like I did earlign.

I dind'dt fall saleep in the bathroom PROGRSSS! Now, eating blueberyy bread and I ckind of what to marry kit.

I thought my hsubnad was hust bringing me wi-ne. I was like, "Wahtewa are you CRAWZZAZZZYY?" His handmmmmmmmmmmmmmmmmmmmmmm was empty.

I feel asleep on "hand".

I just said to my husband athat I vfeel like everything I'm telling you is from a dream.. He said, "That's ture." I'm really confursted.

@secretagentmama duid you just calle me Jar Jar Binks? Because I think you called me Jar Jar Binks, when clearly I am Yoda.

My head is like a bobble toy right now=============================

That's not the window!

just asked my husbna if the guy on TV is named, "Major" and he said, "No, it's Rex". Dude I was THAT close.

Thank goodness, I'm no longer in pain. Though you can still look forward to the Ambien tweets. I live for your amusement, or as I told a friend earlier...I'm here to confurst you.

Labels: How to Lose Readers, Ramblings, Shameless Statements, Socializing

A few nights ago, I had a dream that I hopped on a plane back to New York. I had my kids in tow and after our arrival in the city, we ended up in a cavernous ballroom with an ornamental ceiling and chandeliers above our heads. The room was empty, with one exception.

On the floor was a long piece of paper, plain white, roughly the width of a roll of wrapping paper. It extended about 10 feet and at the foot of it was a set of brushes and a painter's palette. Someone, a faceless someone, told us to begin painting.

At first, my kids and I stared at one another and shrugged our shoulders because we had no idea what to put on our blank canvas. When we finally began to paint, we crafted our art separately from one another. A swoosh here, a dab there, we mixed colors and techniques, blending into each other effortlessly, yet creating our own unique pieces.

We were there for quite a while and though we had worked as three individuals, we stood to find that, together, we had painted a beautiful picture. A picture that looked just like the one I'm standing next to here...

This is the artwork that was inspired by my post for the BlogHer Voices of the Year Art Gala and Auction. My friend, Melisa, snapped the above picture before I got dressed up for the evening (because, right now my friend Jill is all, "She wore jeans?") and just seconds prior to me crying so hard that my nose turned bright red.

I cried because the photo-art was, by complete chance assignment, by my friend Mishi. I cried because my post title was "Into the Light" and she beautifully captured its essence. I cried because she incorporated things that make me feel joy, things that feed my spirit, and things that mean something to me (you can see the fact that I love the sun and trees by looking at my header, which was created by the talented Courtney from Judith Shakes Designs).

I love that creativity can inspire others to be creative. I love that, together, Mishi, Courtney and I have fed off of each other. The reason that I began blogging is because I was searching for an outlet to unleash my own creativity.

The fact that it has led to fueling my dreams is simply a bonus.

Labels: BlogHer, Kids, Photos, Socializing, Tooting My Own Horn

With my trip to New York wrapped up, I have had a full day to reflect on the events of BlogHer'10.

The experience, for me, was not about the venue or the sponsors. It's not about the parties either (though I'm not going to lie, Mama Pop knows how to throw one down).

BlogHer conferences are about learning from each other, about our work, our craft and about our overall awesomeness as a community. We. Are. Awesome.

Of course, some of us are more awesome than others. There are true artists in our midst. People who ooze creativity and whose presence in a room makes the air vibrate and increases our collective intelligence because they actually make us think. And, feel. And, live.

One of those artists is Karen Walrond. She is a genius. She exudes brilliance and I feel like I am more aware of everything since I met her. Not to mention that what she said here, made me cry in all kinds of good ways.

I was so fortunate to get my own personal photo shoot on the streets of New York with Karen behind the lens. I had been in the city for almost two days before we met and had been dealing with a massive headache that would not go away. I was tense, nervous and the stress of the previous two weeks was inside my brain trying to pound its way out.

After spending time with Karen, though? My headache went away, the tension was gone and I finally breathed. She was, quite literally, the cure for what ailed me.

Thank you, Karen, for more than just this photograph. Thank you for making me feel joyous and alive. Thank you for the gift of knowing you.

Labels: BlogHer, Photos, Socializing

I am a self-admitted social media junkie. I enjoy connecting with people and having discussions about all kinds of topics. One day it may be a conversation about hair color (because some of us were stripped of natural highlights when we bore children...love you kids!) and the next day it could be about LOST (Kate should be with Jack, period).

So, guess what fell into my lap? A place where parents can talk about all things...well, parenty. Books, toys, gadgets, and open conversations about spit-up, bed wetting or even how to get rid of the cranberry juice that stains my son's face. No really, if you know how to rid him of it please tell me. My husband calls it his "permanent undersmile".

Back to that parenty place! I have even started my own group where you (yes, you) and I can connect outside of here. Just look over at the right sidebar for the box titled "Gettin' Savvy With It". If you don't know where the right sidebar is, just follow my map...
I have already started a discussion and would love to hear your thoughts. Come on over and take a look around. Let's connect and share! The only thing off limits are electric breast pumps, because some of us, who shall remain nameless (*cough* me *cough*) have some post-traumatic stress. And, sagginess.

Labels: Socializing